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New treatment option for Retinitis Pigmentosa (RP)
Official title Implementation and Evaluation of a Post-Diagnostic Announcement Protocol at the CRMR RefeRet, Quinze-Vingts Hospital
ClinicalTrials.gov ID: NCT07292987
What this study is testing
- What it's testing
- This study explores whether adding early nurse-led and psychological support after the diagnosis of retinitis pigmentosa (RP) can improve patient experience and emotional well-being. RP is a rare, progressive eye disease often diagnosed after a long and difficult process, and receiving the diagnosis can be emotionally distressing.
- Which group you join is decided by chance.
A plain-language read of the study's public ClinicalTrials.gov listing. The study team confirms the details.
Who can take part
Ages 18 to 65
You may be able to join if
- Diagnosed with retinitis pigmentosa (RP) and followed at the Quinze-Vingts Rare Eye Disease Center, with diagnosis made after the project begins
- Aged 18 to 65 years
- Male or female
- French-speaking
- Have a phone number
You likely can't join if
- Pregnant women
- Participants enrolled in a therapeutic clinical trial within the past 12 months
- Individuals deprived of liberty by judicial or administrative decision
- Adults under legal protection or unable to provide informed consent
- Individuals with other medical conditions or taking treatments that could interfere with study evaluations
See the full eligibility criteria
- Diagnosed with retinitis pigmentosa (RP) and followed at the Quinze-Vingts Rare Eye Disease Center, with diagnosis made after the project begins
- Aged 18 to 65 years
- Male or female
- French-speaking
- Have a phone number
- Reside in France
- Pregnant women
- Participants enrolled in a therapeutic clinical trial within the past 12 months
- Individuals deprived of liberty by judicial or administrative decision
- Adults under legal protection or unable to provide informed consent
- Individuals with other medical conditions or taking treatments that could interfere with study evaluations
The study team makes the final eligibility decision.
Where it's taking place
- Paris, Île-de-France Region, France
Questions & answers
Do participants get paid in this trial?
This listing doesn't specify compensation. Many trials still reimburse travel or offer a stipend, so it's worth asking the study team when you connect.
Is it free to join, and do I need insurance?
Searching and applying through BridgeMD is free. In clinical trials the study-related treatment and visits are generally provided at no cost to you. You usually don't need insurance to take part - confirm specifics with the study team.
How long does this study last?
The listing doesn't state an exact length. The study team walks you through the schedule and number of visits before you decide to enroll.
Who can join this trial?
This study is enrolling all sexes, 18 years to 65 years. The study team makes the final eligibility decision.
Where is this trial taking place?
Study sites include Paris, Île-de-France Region, France. Enter your location above to see the nearest site and check your eligibility.
Explore other conditions
BridgeMD is an information and trial-matching tool - not medical advice, and not the study sponsor. Details come from ClinicalTrials.gov; the study team decides eligibility.