Recruiting NA Cancer

New treatment option for Cancer

Official title Revealing Information Genuinely & Honestly Across Time - Communication Preferences Visit

ClinicalTrials.gov ID: NCT06993688

What this study is testing

What it's testing
The purpose of this research study is to obtain insights and feedback from patients and parents about a new approach to support conversations about how cancer may affect one's future life and quality of life (i.e., prognostic communication). This study involves creating a personalized approach to discussing prognosis.

A plain-language read of the study's public ClinicalTrials.gov listing. The study team confirms the details.

Who can take part

Ages 12 and older. Healthy volunteers may be eligible.

You may be able to join if

  • Patients
  • Aged 12-25 years diagnosed with poor prognosis cancer (high risk or otherwise difficult to treat cancers), as defined by a pediatric oncologist...
  • Anticipated by a pediatric oncologist to have one or more disease re-evaluation timepoints over the next six months
  • Not anticipated by a pediatric oncologist to approach end of life in the next three months Parents/Caregivers
  • Aged 18 years or older and/or legally emancipated

You likely can't join if

  • Does not meet the stated inclusion criteria
See the full eligibility criteria
Who can join
  • Patients
  • Aged 12-25 years diagnosed with poor prognosis cancer (high risk or otherwise difficult to treat cancers), as defined by a pediatric oncologist estimating odds of overall survival as 50% or less
  • Anticipated by a pediatric oncologist to have one or more disease re-evaluation timepoints over the next six months
  • Not anticipated by a pediatric oncologist to approach end of life in the next three months Parents/Caregivers
  • Aged 18 years or older and/or legally emancipated
  • Parent or other self-identified caregiver of a patient of any age with poor prognosis cancer (as defined above) Oncologists
  • Pediatric oncologists who treat eligible patients/caregivers at the study site, St. Jude Children's Research Hospital (SJCRH) or its included affiliates:
  • Peoria, IL: The Jim and Trudy Maloof St. Jude Midwest Affiliate Clinic
  • Charlotte, NC: Novant Health Hemby Children's Hospital
  • Shreveport, LA: Ochsner LSU Health-Feist-Weiller Cancer Center Communication Preferences Companions (CPCs)
  • Multidisciplinary clinicians from a participant's psychosocial or nursing care team, identified by that participant to serve as their 'communication preferences companion' (CPC) during the pilot
  • Provides clinical care to pediatric cancer patients under the auspices of psychology, social work, spiritual care, child life, cultural navigation, quality of life/palliative care, or nursing
What rules you out
  • Does not meet the stated inclusion criteria

The study team makes the final eligibility decision.

Where it's taking place

  • Memphis, Tennessee, United States

Questions & answers

Do participants get paid in this trial?

This listing doesn't specify compensation. Many trials still reimburse travel or offer a stipend, so it's worth asking the study team when you connect.

Is it free to join, and do I need insurance?

Searching and applying through BridgeMD is free. In clinical trials the study-related treatment and visits are generally provided at no cost to you. You usually don't need insurance to take part - confirm specifics with the study team.

How long does this study last?

The listing doesn't state an exact length. The study team walks you through the schedule and number of visits before you decide to enroll.

Who can join this trial?

This study is enrolling all sexes, 12 years and older. Healthy volunteers may be eligible. The study team makes the final eligibility decision.

Where is this trial taking place?

Study sites include Memphis, Tennessee, United States. Enter your location above to see the nearest site and check your eligibility.

Explore other conditions

BridgeMD is an information and trial-matching tool - not medical advice, and not the study sponsor. Details come from ClinicalTrials.gov; the study team decides eligibility.